Membership details
SAUK history
Patrons & Trustees
Glossary
Book list
How to join

The Scoliosis Association (UK) is an independent organisation and its aims are simple: to put people with scoliosis in touch with each other, if they so wish, for mutual support and to exchange experience; to provide information about scoliosis that sometimes is not available in busy hospital clinics; and to inform the general public about scoliosis and how to detect it early in children.

SAUK's  Helpline receives and responds to about 40 enquiries a week about scoliosis. The callers, often distressed, reflect current experience of family doctors, hospital clinics and treatment, and school attitudes, especially on bullying of children because of their shape or because of wearing a brace. These callers need support, advice and reassurance. The first call is extremely important to families. In most cases, their child's scoliosis has just been diagnosed. When the consultant explains the condition, prognosis and treatment, the news can be distressing, and it is often hard to remember just what was said or the implications. SAUK's Helpline can provide the information they seek. 

Calls are always treated in confidence and in a friendly and understanding way, and are followed up by written information and the offer of contacts with other families or young people who 'have been there' themselves. Our regional secretaries will know about local facilities and are able to offer practical support. They all either have scoliosis themselves or are parents or relation of a child who does.

SAUK membership opens the door to a network of support through contacts and meetings. The twice yearly newsletter (Backbone) contains news, views, ideas, hints, and information about all aspects of scoliosis. Reviews by scoliosis experts and other specialists, and letters from members are also important contributions.